WELCOME

August 27- the ultrasound. 12 weeks since the limp began As promised, the ultrasound takes only a few minutes. Cooper sits on my lap and plays a game while they scan his knees, both of them. I ask for them to look at both knees so we could compare. It's easy and inexpensive, thank goodness. Almost immediately following the scan, the results are in his chart. I know the doctor will see them. Will she wonder how I got it done, after just telling me yesterday that it was not pos

With the steroid injection complete, we go home to wait and hope that his limping will improve. I watch from the wifi camera every morning when Cooper first gets out of bed. Does it seem like he is limping less? It does not improve. He won't bend his knee. Weeks go by. Still, nothing. Frustration hits an all time high. This is going to be our lives now, these scary medications, the side effects, the hoping he doesn't catch any bugs too scary because of the medications. I had

July 8- the first Rheumatologist On Monday, Cooper had an MRI done on his left knee. On Wednesday, we are meeting with a rheumatologist. On the way to this appointment, I had furiously chatted online with a woman that has two daughters with Down syndrome and arthritis. She had given me so much information going into this appointment, questions to ask, things to avoid, things to watch for in the exam. She armored me with some confidence, and that is absolutely invaluable when