top of page

Down Syndrome

I wish I could adequately describe the new feelings I feel.


The scary.


The joy.


The heartache.


The love.


In all my life, I never knew how unsteady the unknown really is. It's heavy. It's freeing? It's never ending worry, but in the same breath, it's a beautiful letting go.


Our son surprised us with Down Syndrome 10 months ago today. And every day has been part of an adventure I never imagined we would take.


His name is Cooper.


When a typical baby is born, we expect them to have the world. We tell them they deserve to have every opportunity known to man. Their birthright is the freedom to be and do whatever they choose.


My Cooper's birthright feels different. Just by being born with an extra chromosome, the world sees him as a burden. The world puts him in a box labeled "special needs" and they assume he can't. They hear diagnosis and hear "problem." They hear syndrome and hear "sad."


Cooper has so much against him from day 1. The world may never see him the way I do. He is my every day superhero. My real life superman.


He's my strength when I feel I have none left. My hope when the darkness surrounds me. My guiding light when I begin to lose my way.


I feel sorry not everyone has their own superhero. So, here I am trying to share mine.


Meet my Cooperman.



Comments


bottom of page